Outfit of the Day?

You must think I’ve changed, become a bit flaky or just wondering what am I doing that for? Everyday, posting a photo of herself, her outfit of the day, what the heck is that all about? Yes, I have changed a bit and I promise there is a reason.

You see I always shared photos of the day, photos of the stages of when I get my hair done and motivational messages. Up until November 29, 2017, I used to take them, make faces with them and send them to my best friend, my Mom. She’d text me back telling me if it was a good or bad outfit, laugh, give me her own motivational message or just send faces back to me.

When the world first turned upside down, mom was awake and I’d see her everyday so I did not need to take the photo, it was done in person. When Mom was more sedated, I was focused on what can I do to get her better and praying. During this time I did have to have my hair done and my Big Brother John indulged me when I told him I had to do this photo thing. It was not easy and I was sad and I honestly can’t tell you why I had to do it, but I just had to.

I guess I just think if I continue to take the photo and show them it’s keeping on with what became a fun “tradition” with my mom and keeps her close with me. Just a little while before the world turned, mom and I had discussed at how unsocial and hate filled FaceBook became and I showed her the “other app,” Instagram. Instagram was just filled with photos and not so filled with hate and hurt. I would show mom the photos and what was going on in Instagram, she’d laugh and oooh at all the baby photos.

Several months before I found LuLaRoe and I showed mom the idea and what it was about, all the patterns all the colors. She thought they were very pretty and told me to give it a try. Well, you’ve seen my photos you know I have LOL. It’s taken me from 2 pairs of jeans and 2 khaki, a couple of skirts and only a few tops that were super oversized on me to…………… a full closet of Leggings, Dresses, Different Style Tops, Kimonos and Cardigans, that make me feel happy and fun.

I am sorry and sad that mom can’t see me in person wearing my new outfits of the day. I’m sorry I can’t hear her giggle or give me a thumbs up to tell me she liked it. I know she’s around me but it’s different because I can’t see or hear her. I’m not looking for everyone to respond and go overboard and compliment me, that’s not my style. I just felt like explaining the Outfit of the Day photos and where it’s coming from.

LuLaRoe is more than clothing, it’s a direct sales company and filled with really Great people from around the country. Some of the Amazing folks I’ve found are Jennifer and Shane, Erin and Chris, Donna and Ashley! I’ve also met Tanya and Kelly who are Understanding, Fantastic and Fabulous and So Much More!!

I do sometimes cross my Instagram post over to FaceBook, but, I’m really taking a break from FaceBook. I am keeping up with the groups I’m in and do a quick scroll now and then but ……….. if you want to find me it’s suzie_sweetreds on Instagram.

Life Changes When You’re 9

Here’s the next post in my ~*~ Beginnings ~*~ It’s where my life changed and began again.  A realization kicked in as I approached my 9th birthday that Life Changes In A Moment.

Happy go lucky Suzie, had a great childhood in a wonderful small town where everyone knew everyone (many related to each other).  I did ballet, tap, twirling and still had time to play with my friends and get the homework done.  I was even the weather girl in the local newspaper hehehe just mood pictures of me to show if it was rainy or sunny.

Weather Girl Not A Fan Of Rain

Weather Girl Not A Fan Of Rai

Honestly, I don’t quite remember how it happened.  It’s not that I haven’t asked, when you are young things sometimes just blur together.  I don’t remember being tired, I can tell you what my 3rd grade classroom looked like but I can’t remember having to put my head down on the desk to rest.  I remember the 3 flights of stairs up to that classroom but I don’t remember not being able to walk them.  I remember the kids in my class, I remember going outside for gym, but I don’t remember not being able to play.  I don’t even remember being in the doctor’s office.

I remember being in school, I remember laying on the ‘love seat’ in our living room watching someone pace in the dining room, I remember the phone ring.  The next thing I remember is being in the car, Dad driving and mom upset.  We’re on the George Washington Bridge and Dad’s banging the wheel cause the directions were bad.

(side note, do you know if you take the GWB on the lower level in the right lane, it takes you to the Deegan Expressway, which takes you to Yankee Stadium)

NY Yankees Logo

Dad says, I’ve never been able to get to Yankee Stadium and there it is, to which I said, that means we should go to the game Dad.  We can’t , it’s January 😦

I don’t know how we got back on the right way, I remember being stuck at the light and the guy spitting on the windshield to wipe it off with newspaper for money.  We parked the car in the lot and walk, I remember looking at the walk up to the hospital, I could never forget that, it seemed like the sidewalk went on forever and it was almost a severe angle on a mountain hill.  Daddy carried me, with mommy walking next to us telling me it was going to be alright.

Trust me the angle of that hill was OMG steep

Trust me the angle of that hill was OMG steep

Asking Mom years later to fill in the blanks to kind of complete my memories, here’s what I was told.  As stated I was in 3rd grade and a vibrant sparkly tomboy.  Running and doing what I can always with the giggles.  Suddenly, I couldn’t walk the stairs, I kept putting my head down on the desk and sitting out of gym.  My teachers noticed, Mrs. Truncellito and Mrs. Elin specifically.  They were having the yearly parent teacher meetings, my third grade teacher, Mrs. T pushed up my parents meeting.  The day after that meeting mom had me at the pediatrician who ran some tests and told mom he thought he knew what it was.  The phone ring that night I remember was Dr. Poch, my parents met with him and he sent me to Columbia Presbyterian / Babies Hospital.

I will write more about my experiences during my 14day stay at Babies Hospital.

For now I needed to tell this start of the story.  This was the new beginning of my life when I turned 9 and found out I had Leukemia, A.L.L (Acute Lymphocytic Leukemia).

I found my heroes in life during this time.  Dad, Mom, My 3 Big Brothers, Mrs. T, Mrs. Elin and a few more.  Don’t be sad for me, don’t ever be sad for me because I live through laughter and love.  I have Hope and too many people in my corner fighting with me including those that are now my angels above!    I AM a Survivor and I’m Fearless!

Life is meant to be lived, there really is a reason for everything.  Plan for the future, for sure but Life Changes In An Instant, I’m living proof of that.  Laugh as much as you can, Love as many people as you can, Sing and Dance always as though no one is looking, be Happy that you’ve woken up to a new day and Live Each Moment.

ChildCancerRibbonMagnetLeukemia Be Strong